Sickle Cell Disease Association of America
For more than 35 years, the Sickle Cell Disease Association of America, Inc. (SCDAA) and its 50-plus member organizations and affiliates have demonstrated how community-based organizations can work as partners with medical facilities local and state government agencies to pursue national health care objectives. SCDAA has recognized that one agency cannot meet all the needs and challenges of those living with sickle cell disease (SCD) and their families. As part of its strategic efforts and to enhance its effectiveness, SCDAA has partnered with government, private and other not-for-profit agencies and programs at the local, state, and national levels. These have included National Association for the Advancement of Colored People (NAACP), Urban League, National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Disease Control (CDC), the United Way, the Robert Wood Johnson Foundation and many others.
SCDAA continues to recognize how critical it is to garner the needed support for the social and public health aspects of SCD as fundamentals to a comprehensive plan that meet the needs of this population. Over the last two decades, SCDAA has successfully developed partnerships with Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB) and Centers for Disease Control (CDC) to develop a number of education, treatment services, delivery and evidence-based efforts to improve the lives of persons with SCD and their and to educate and inform practitioners, service providers and the general public.